I'm Aware That I'm Rare: the phaware® podcast
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I'm Aware That I'm Rare: the phaware® podcast
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from me...
Recent Episodes
1191 episodes
Carolyn Mathur - phaware® interview 587
Out of Breath, Not Out of Dreams: One Woman's PH Journey Across 79 Countries
Carolyn Mathur was told she had only hours to live. Then d...
Episode 587 - Carolyn Mathur
Out of Breath, Not Out of Dreams: One Woman's PH Journey Across 79 Countries
Carolyn Mathur was told she had only hours to live. Then d...
Sherri Odusanya - phaware® interview 586
Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger.
Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a...
Episode 586 - Sherri Odusanya
Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger.
Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a...
Kathy Ilano - phaware® interview 585
Misdiagnosed at 19, Married After Heart Failure and Living Moment to Moment
Pulmonary hypertension patient, Kathy Ilano believed she'd never mar...
Episode 585 - Kathy Ilano
Misdiagnosed at 19, Married After Heart Failure and Living Moment to Moment
Pulmonary hypertension patient, Kathy Ilano believed she'd never mar...
Christina Ryan - phaware® interview 584
She Was the Caregiver Until Pulmonary Hypertension Made Her the Patient
For Christine Ryan, being ill wasn't the hardest part, letting...
Episode 584 - Christine Ryan
She Was the Caregiver Until Pulmonary Hypertension Made Her the Patient
For Christine Ryan, being ill wasn't the hardest part, letting...
Amanda Chickie - phaware® interview 583
The Dream She Lost at 18 and the Child Who Gave It Back
One of the first questions Amanda Chickie asked after her pulmonary hypertension diagnos...
Episode 583 - Amanda Chickie
The Dream She Lost at 18 and the Child Who Gave It Back
One of the first questions Amanda Chickie asked after her pulmonary hypertension diagnos...
Lisa Harder - phaware® interview 582
A New Mother's Greatest Fear: "Am I Going to See My Daughter Grow Up?"
When Lisa Harder became a new mom, she never imagined that shortn...
Episode 582 - Lisa Harder
A New Mother's Greatest Fear: "Am I Going to See My Daughter Grow Up?"
When Lisa Harder became a new mom, she never imagined that shortness of b...
Cathleen Harrington - phaware® interview 581
From Wedding Bells to a Life-Altering Diagnosis
Cathleen Harrington was young, athletic, and newly engaged when pulmonary hypertension c...
Episode 581 - Cathleen Harrington
From Wedding Bells to a Life-Altering Diagnosis
Cathleen Harrington was young, athletic, and newly engaged when pulmonary hypertension c...
Evan Holm, LMSW, SWCM - phaware® interview 580
Why a Social Worker Might Be the Most Important Person on a PH Care Team
When pulmonary hypertension finally gets a name, fear rushes in fast. S...
Episode 580 - Evan Holm, LMSW, SWCM
Why a Social Worker Might Be the Most Important Person on a PH Care Team
When pulmonary hypertension finally gets a name, fear rushes in fast....
Laura Camponeschi - phaware® interview 579
Who Cares for the Caregiver When Everyone Else Comes First?
Behind every pulmonary hypertension patient is someone quietly running on...
Episode 579 - Laura Camponeschi
Who Cares for the Caregiver When Everyone Else Comes First?
Behind every pulmonary hypertension patient is someone quietly running on...
Dawn Ogden - phaware® podcast interview 578
Three Generations. One Gene. A Rare Disease She Couldn't Outrun.
Dawn Ogden has lived her entire adult life under the shadow of pulmonary hypert...
Episode 578 - Dawn Ogden
Three Generations. One Gene. A Rare Disease She Couldn't Outrun.
Dawn Ogden has lived her entire adult life under the shadow of pulmonary hypert...
Carla Kinsey - phaware® podcast interview 577
She Went Looking for Answers and Ended Up Building a Lifeline
Before Zoom, before Facebook groups, pulmonary hypertension patient, Carla...
Episode 577 - Carla Kinsey
She Went Looking for Answers and Ended Up Building a Lifeline
Before Zoom, before Facebook groups, pulmonary hypertension patient, Carla...
Karen Sawyer - phaware® interview 576
PH Tried to Isolate Her. She Turned Loneliness into a Lifeline for Others
Pulmonary hypertension nearly stole Karen Sawyer's sense of self. Inst...
Episode 576 - Karen Sawyer
PH Tried to Isolate Her. She Turned Loneliness into a Lifeline for Others
Pulmonary hypertension nearly stole Karen Sawyer's sense of self. Inst...
Carol Stokley - phaware® interview 575
A Silent Blood Clot, a 10-Hour Surgery, and a Second Chance at Life
Canadian CTEPH patient, Carol Stokley was healthy, active, and unsto...
Episode 575 - Carol Stokley
A Silent Blood Clot, a 10-Hour Surgery, and a Second Chance at Life
Canadian CTEPH patient, Carol Stokley was healthy, active, and unsto...
Jenny Yang, MD - phaware® interview 574
From "Untreatable" to Life-Changing: The New Era of CTEPH Care
What happens when patients are told everything looks "normal" but they st...
Episode 574 - Jenny Yang, MD
From "Untreatable" to Life-Changing: The New Era of CTEPH Care
What happens when patients are told everything looks "normal" but they st...
Eric Borstein - phaware® interview 573
Why "The Walking Guy" Trusts His Therapist as Much as His Cardiologist
For PAH patient, Eric Borstein, walking started as a way to sur...
Episode 573 - Eric Borstein
Why "The Walking Guy" Trusts His Therapist as Much as His Cardiologist
For PAH patient, Eric Borstein, walking started as a way to sur...
Nicole Dempsey - phaware® interview 572
Don't Let PH Ground You: A Real-World PH Travel Playbook
For Nicole Dempsey, travel has always meant freedom. After being diagnosed with...
Episode 572 - Nicole Dempsey
Don't Let PH Ground You: A Real-World PH Travel Playbook
For Nicole Dempsey, travel has always meant freedom. After being diagnosed with...
Florin Dumitrescu - phaware® interview 571
He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered
From a devastating diagnosis to a lung transplant that changed everything, Florin...
Episode 571 - Florin Dumitrescu
He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered
From a devastating diagnosis to a lung transplant that changed everything,...
Terri Keplinger - phaware® interview 570
She'd Never Been Sick - Until a Rare Disease Hit Like a Brick Wall
Terri Keplinger went from healthy and unstoppable to fighting for breath afte...
Episode 570 - Terrie Keplinger
She'd Never Been Sick - Until a Rare Disease Hit Like a Brick Wall
Terri Keplinger went from healthy and unstoppable to fighting for breath afte...
Rey Adam Rodriguez - phaware® interview 569
From Newlywed to Newly Diagnosed
Six months after saying "I do," Rey Adam Rodriguez was told he had pulmonary arterial hypertension. Rey...
Episode 569 - Rey Adam Rodriguez
From Newlywed to Newly Diagnosed
Six months after saying "I do," Rey Adam Rodriguez was told he had pulmonary arterial hypertension. Rey...
Sherry Rouse - phaware® interview 568
She Was Prepared for Breast Cancer Not for a Rare, Incurable Disease
At 30, Sherry Rouse went in for a breast cancer screening. What doc...
Episode 568 - Sherry Rouse
She Was Prepared for Breast Cancer Not for a Rare, Incurable Disease
At 30, Sherry Rouse went in for a breast cancer screening. What do...